A compelling new book shines a bright spotlight on the stigma surrounding sickle cell anaemia, sharing the stories of 15 individuals living courageously with the condition.
Manjaleyon, written by Bahraini author Zainab Al Khabbaz, explores not only the physical toll of the disease but also the social and emotional challenges sufferers face daily, struggles that are often overlooked.
The 224-page book was officially launched last month at a special ceremony attended by a number of writers and literary figures.
In Bahrain, around 8,500 people are currently living with sickle cell disease, a group of inherited blood disorders that includes sickle cell anaemia.
The condition results from a genetic mutation that produces abnormal haemoglobin, causing red blood cells to become rigid and sickle-shaped.
“The book aims to show people that people living with this disease have lives and achievements they want to accomplish, even while fighting this battle,” the 28-year-old from Manama told the GDN. “Unfortunately, there is a great deal of stigma surrounding this disease. Many people face these challenges at work, in marriage, education and other areas of society.
“I wanted to challenge these misconceptions by amplifying the voices of 15 individuals who live with this condition every day,” she said.
https://www.gdnonline.com/Details/1375473
